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Talking Red – The Haemophilia Society UK’s campaign to get women talking about bleeding disorders

A bleeding disorder is a serious lifelong condition often requiring daily treatment and specialist care. There is a lot of misunderstanding about bleeding disorders and many people don’t know that women are affected too.

In fact, tens of thousands of women across the UK are living with the symptoms of a bleeding disorder without even knowing it.

The Talking Red campaign was launched to make women more aware of the symptoms of a bleeding disorder - heavy periods, bruising easily and prolonged bleeding after a procedure or childbirth - and to promote better understanding of what it means to live with such a condition. 

Bleeding disorders can’t be cured but there is effective treatment available, so our message is get Talking Red to help the thousands of women who are suffering in silence.

Our first Talking Red awareness week was packed full of activities and culminated in Red Knickers Night on June 21, Summer Solstice - the longest day of the year.

Lots of our supporters also got involved in the first Paint it RED event. Family, friends and workmates got together to paint their nails red to show their support for the campaign. 

Nurses and doctors did their bit too by displaying informaton and Talking Red to colleagues and patients. 

It's not too late to get involved in Talking Red and help us raise awareness of bleeding disorders in women. You can even download some of the Talking Red materials to use at your event. 

About The Haemophilia Society UK

The only national charity dedicated to supporting people with bleeding disorders, The Haemophilia Society has, for more than 60 years, campaigned for better awareness, and been a trusted source of information and practical advice for people affected.

There are currently more than 25,000 people in the UK with a bleeding disorder and the number goes up every year. We strive to provide the extra support needed allowing people to live a fulfilled and healthy life such as:

  • Weekends away for families with a child that is newly diagnosed so they can learn and understand the condition that at first is extremely scary
  • Children's activity weekends where they can learn about their condition, and meet other children in similar situations
  • Local community support through our 12 local groups across the UK
  • Information for women who also have bleeding disorders (although it is often only seen that men have it)
  • Support for those growing elderly who may be losing their independence and becoming more isolated
  • Information and peer support for those with an Inhibitor

The Haemophilia Society is under supported due to the rarity of the disease making it almost invisible to the general public.

When approaching supporters and funders we first have to explain what bleeding disorders are before we begin to explain the great work we do and why we need their support. This makes it extremely challenging in an already difficult economic environment to raise the vital funds needed to give the bleeding disorder community the services they deserve and require.

For more information please visit www.haemophilia.org.uk or call The Haemophilia Society on 0207 939 0780. 

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